Hypermobile Ehlers-Danlos Syndrome (hEDS) Treatment

Hypermobile Ehlers-Danlos Syndrome (hEDS) presents a unique set of challenges for those affected, often impacting multiple aspects of daily life due to its complex and systemic nature. As a regenerative medicine practitioner, I understand that each individual’s experience with hEDS is distinct, requiring a personalized and comprehensive approach to care. My goal is to provide treatments that not only address the physical manifestations of the disorder but also enhance overall well-being by considering the full spectrum of symptoms and comorbidities associated with hEDS.

In my practice, I emphasize the importance of a tailored treatment plan that evolves with the patient’s needs. By combining advanced regenerative therapies with a deep understanding of hEDS, I work closely with patients to create a management strategy that targets the root causes of their symptoms while also supporting their long-term health and quality of life. This individualized approach allows for more effective management of the disorder, helping patients lead more active and fulfilling lives despite the challenges of hEDS.

What is Hypermobile Ehlers-Danlos Syndrome (hEDS) and How Can it Be Treated?

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are both connective tissue disorders, but hEDS stands out due to its more specific clinical features and potential genetic basis. While HSD includes individuals with joint hypermobility and related symptoms that don’t meet the strict criteria for specific Ehlers-Danlos syndromes, hEDS is a distinct subtype marked by joint hypermobility, skin involvement, and a likely genetic connection to collagen and connective tissue formation.

The management of hEDS often parallels that of HSD, with treatment strategies tailored to the individual’s unique symptoms and comorbidities. However, due to the specific nature of hEDS, there may be a greater focus on addressing related systemic issues such as craniocervical instability (CCI), mast cell activation syndrome (MCAS), dysautonomia (often POTS), gastroparesis, and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This personalized approach is essential for effectively managing the complex and multifaceted challenges posed by hEDS.

Hypermobile Ehlers-Danlos Syndrome (hEDS):

  • Definition:
    hEDS is a specific subtype of Ehlers-Danlos syndrome characterized by joint hypermobility, along with skin hyperextensibility, joint pain not otherwise explained, and a family history of a hEDS diagnosis or of hypermobile joints.
  • Criteria:
    Diagnosis requires meeting specific clinical criteria outlined in the 2017 International Classification of the Ehlers-Danlos Syndromes, including generalized joint hypermobility, skin involvement, and other systemic manifestations.
  • Genetics:
    hEDS does have a genetic basis, most likely involving mutations in genes related to collagen and connective tissue formation, although there is no known identifiable genetic mutation.
  • Symptoms:
    Joint hypermobility and related symptoms can vary widely in severity and impact on daily life. Individuals may experience chronic pain, skin changes, fatigue, gastrointestinal issues, immune system dysregulation, autonomic nervous system disorders, and other systemic manifestations.
  • Management:
    An integrative approach tailors treatment to each individual’s needs, aiming for a balanced management plan that addresses physical symptoms, comorbidities (listed above), and overall quality of life. Regular monitoring and adjustments to the treatment plan are essential to optimize outcomes.

Get the Personalized Help You Need to Hypermobile Ehlers-Danlos Syndrome (hEDS)

If you are dealing with Hypermobile Ehlers-Danlos Syndrome (hEDS), get the personalized, expert support you need to better treat the condition and get your life back.

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Dr. Squires takes a passionate approach to her work. She is genuinely concerned for the well being of the patients under her care. Her prolo therapy helped my shoulder greatly.  She also cured other ailments in our family.  Highly recommended.

— Peter N.